Cambridge University

EPIC-Norfolk: Participant Panel: Archive of previous meeting summaries: 2012

October 2012

The Panel is currently actively looking for new members. If any existing EPIC participants are willing to join the Panel they should contact Nichola Dalzell on 01603 218165.

The Panel were informed that recent documents they have worked on (latest EPIC newsletter and participant information leaflets) are currently going out with the approach for the EPIC Fourth Health Check (4HC).

Kate Westgate, Physical Activity Specialist from the MRC Epidemiology Unit in Cambridge gave a very interesting talk to members about measuring physical activity, accelerometry and the EPIC study. She described the definition of physical activity, how we can measure it more precisely, why it is an important measure and the possible methods for doing this.

An update of the 4HC activities was provided. The Panel members were asked to provide feedback and comments on the proposed format and content of the results feedback letters and covering information which will be provided as part of the 4HC.

The Frequently Asked Questions (FAQ) page on the website has been reviewed by the researchers and a draft copy uploaded to the website. The Panel members were asked to review this and forward their queries, comments, or additions for consideration.

Feedback was also given regarding Panel members' involvement in a study looking at Public and Patient Involvement in Research.

June 2012

Feedback was given on the changes made (previously recommended by the Panel) to the EPIC-Norfolk Summer Newsletter and the EPIC Fourth Health Check (4HC) Participant Information Sheet. The suggested alterations had been extremely useful and of particular importance as together the two documents will provide the initial approach to EPIC participants for the 4HC.

Discussion then centred on the possible Panel involvement in a research study (RAPPORT Study) which is to be conducted under a joint collaboration between the University of Hertfordshire and the University of East Anglia. This study aims to investigate the role of public involvement within research and the EPAP Panel was invited to take part as one of the case studies. The study will last for 18 months and the Panel activity during this time will be observed. All Panel members were enthusiastic about participating.

Finally, Nichola Dalzell presented a concise overview of the evolution of the EPIC study, from the First Health Check (1HC) through to the planning and practical issues of the fourth. This presentation was followed by a final question and answer session, before the meeting concluded.

Members then discussed meeting times and dates for convenience to the majority, whilst accepting that no one date allowed total participation for all members.

Next meeting planned for the autumn.

March 2012

Thanks and feedback were given, both to and by, those Panel members who worked alongside the EPIC team during two recent public events. The first being the EPIC Research Day in December, where two Panel members kindly gave presentations to an audience of research professionals. One focused on experience of participation in EPIC and the other was centred on the experience of being an EPAP member. Panel members also helped at the Cambridge Science Festival in March where they accompanied members of the public through the educational and interactive EPIC public engagement exhibit.

The desired layout and content of the summer newsletter was then discussed. The Panel were presented with a draft newsletter and asked to make any edits or suggest any further content that they would like to see featured. This process was then repeated for the EPIC Fourth Health Check Participant Information Sheet.

Finally, the administration and positive and negative effects of possible intervention measures were debated. Specific interventions were looked at, such as regulated and monitored daily exercise routines, including those provided by electronic devices. One such device was installed for the meeting and several Panel members enjoyed various sample activities before providing constructive feedback for consideration should this be pursued further.